Dear Alex

There are many words that can describe my visit to the MS Sessions in Prague…

Exciting, inspirational, eye opening

But also…

Totally emotional

Actually, one of the activities we were asked to complete was so emotional that I just couldn’t bring myself to do it.

We were asked to write a letter, with all the things that you would tell your newly diagnosed self

Don’t get me wrong, I tried to do it, but after the first sentence I could feel the water works starting up. I just couldn’t carry on writing in front of the 200 other people there.

It’s something I really wanted to do. So when I got home, I grabbed a box of tissues, prepared myself for the bombardment of emotion, and started writing…

 

Alex, your life is about to change forever….

I won’t lie and tell you that this is going to be easy. In fact, it’s going to the hardest thing that you’ve ever had to live through. You’re going to experience things that no-one should ever have to experience, get through days that no-one should be allowed to have.

But, you’re also going to grow as a person. I know it doesn’t feel like it right now, but you are strong enough to fight this. Each day you live with this, you are going to get stronger.

They say that every cloud has a silver lining, and it does… but the real truth is that sometimes we have to make our own silver linings. You can’t sit and wait for this to get better, to go away, because it’s not going to. This may not be the life that you would have chosen, but it’s the one that you’ve got, so make the most of it!

This is going to either make or break you. 

You can chose to feel powerless, to not fight back, and let this swallow you whole. Or you can embrace it. Use this experience to better yourself, to make you a more resilient person, a more accepting and understanding individual.

Ok, for the next few months you are going to have to improvise a little.

Unfortunately there isn’t an instructional manual that I can give you that’ll make this easy to live with, or even understand

I will tell you this

There are going to be some rough days ahead. Months filled with symptoms, doctor’s appointments, medications, and tests, but you’ll get through them.

But, there are also going to be some pretty awesome days too!

Actually, you are going to do things that you never would have done if you hadn’t been diagnosed with MS. You are going to meet people you never would have met, travel places you never would have travelled, and even eat foods that you never would have eaten!

But… that’s all spoilers

I know you won’t believe me… I know exactly how stubborn you are

You might not see it now, but hang in there. I can promise you that you are going to make the most out of your life.

Yours Sincerely,

Alex”

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